VSC, DSD and IV inclusion in sport and physical activity

The survey is aimed at VSC, DSD, IV individuals, and parents, guardians or carers of individuals with a VSC, DSD, IV. The survey will ask a series of questions on different topics relating to a person’s experience of VSC, DSD, IV, linking this to, and importantly focusing on, grassroots sport and physical activity. This i important even if you haven’t engaged in sport and physical activity

This will offer iUK and Pride Sports insight into the barriers and challenges around participation in sports and physical activity. iUK and Pride Sports will use this anonymous information to create some policy recommendations around awareness of VSC, DSD, IV and the inclusion in sport for individuals with VSC, DSD, IV. These policy recommendations will be submitted to Sport England for internal use; and anonymous data may be used by iUK and Pride Sport to increase awareness issues facing VSC, DSD, IV individuals; unless specific consent is given this will remain anonymous.

Sport and physical activity provides not only a chance to improve and maintain physical health and fitness, but also provides benefits to social and mental health and wellbeing. Sport should be accessible by all people, however it is recognised that people with a VSC, DSD, IV may face significant barriers to inclusion, for a whole variety of reasons, therefore missing out on the benefits of sport and physical activity. 

Many people with a VSC, DSD, IV may in fact already be partaking in sport and physical activity. This could consist of walking, swimming, exercise videos at home, a sport club and much more. This survey aims to understand the feelings and experiences towards all forms of sport and physical activity, of people with a VSC, DSD, IV from past to present, recognising that past experiences may impact current feelings towards sport and physical activity. 

Pride Sports and iUK’s partnership approach has recognised, from the beginning, the importance of integrating the voices of people with a VSC, DSD, IV within this work. There have seen a series of focus groups carried out with a diverse range of unaffiliated contributors, whose comments and experiences contributed to the development of these survey questions.

*Terminology Guidance

As noted there are a variety of terms used and understood for people who have bodies that vary in their biological development; these terms maybe as follows: 

VSC (Variation of Sex Characteristics)

DSD (Difference In Sex Development)

IV (Intersex Variation)

Some people use a defined term specific to their difference such as Androgen Insensitivity Syndrome or AIS / CAIS / PAIS / MAIS, Kleinfelters, MRKH, Persistent Mullerian Duct Syndrome, Swyers Syndrome, Turners Syndrome. 

Intersex is also a term used by some as an umbrella term, which encompasses in loose the encompassing terms: VSCs, DSDs, or variation / ‘condition’ specifics. 

No term is incorrect for an individual and therefore this survey clearly welcomes contributors regardless of their choice of terminology.